On March 24th, we’re riding to cure Friedreich’s ataxia (FA), a debilitating, life shortening neuromuscular disease. We’ll ride with local FA families, friends and cycling enthusiasts to redefine what is possible in FA research.
This is the 4th year SEI has participated in rideATAXIA Dallas. SEI has a personal connection to FARA and this event. The family of one of our employees has two sons with Friedreich's Ataxia (FA). Jason and Alex Dagley have had FA their entire lives. However, the symptoms of the disorder only appear after puberty and continue to worsen for the rest of thier lives. Jason and Alex were perfectly fine, unincombered children for the first 10-12 years of their lives. It was then that the disorder began to take away their ability to walk (among other things).
rideATAXIA was founded by Kyle Bryant, a young man with FA. Kyle redefined what was possible in his life when he took up recumbent cycling. He says after training for and completing his first century ride, "I can't even walk down the street, but I rode 100 miles in a day. After that the sky was the limit." Since 2007, rideATAXIA has raised over $6 million to fund FA research progress.
Join us in supporting the urgent pace of that research. Donate. Together we will cure FA!