Cathryn is walking to cure Friedrich's Ataxia
On June 10th, I'm walking to cure Friedreich’s ataxia (FA), a debilitating, life shortening neuromuscular disease. Emma has FA. There is no cure...yet. Thanks to research funded by rideATAXIA and the Friedreich's Ataxia Research Alliance (FARA, started by parents of children with FA), there is better symptom management, people are living longer and perhaps progressing more slowly. Emma and I are excited about the current research pipeline, as there are some promising developments. As you know, the research takes a long time to reach the therapy stage. The more we can fund now, the greater the chance that there will be a discovery that will help Emma and others with this horrible disease.
rideATAXIA was founded by Kyle Bryant, a young man with FA from Sacramento, CA. Kyle redefined what was possible in his life when he took up recumbent cycling. He says after training for and completing his first century ride, "I can't even walk down the street, but I rode 100 miles in a day. After that the sky was the limit." Since 2007, rideATAXIA has raised over $5 million to fund FA research progress. The movie, The Ataxian, documents this epic bike ride across America.
Please join me in supporting the urgent pace of FA research and donate. Together we will cure FA!
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