Welcome to My Personal Page
About one in 50,000 people in the United States have Friedreich's ataxia. Onset of symptoms can vary from childhood to adulthood. Childhood onset of FA is usually between the ages of 5 and 15 and tends to be associated with a more rapid progression. Late onset FA (LOFA) can occur anytime during adulthood. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.
This site is dedicated to showing my love of swimming and my love of family. Somehow I managed to combine the two! If you want to learn more about what this means, please click on the link below, it will take you to a donation webpage for FARA (Friedreich's Ataxia Research Alliance). On it I explain more about what this disease is and how it affects my family. In late 2012, I decided to use my swimming to raise general awareness about Friedreich's Ataxia, since then I have completed numerous open water marathon swims and plan to complete many more. Please share my story with your friends and family, and if you can - donate to FARA. Research is our only hope for a cure.
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