Welcome to Edie's page
On February 24th, I'm riding to cure Friedreich’s ataxia (FA), a debilitating, life shortening neuromuscular disease. My sister Beth has lived with this disease all her life, but it only became diagnosed 13 years ago. As a result, she is restricted to a wheelchair, but she still manages to work full time, raise two lovely teenagers and 6 bunnies, 2 guinea pigs, and a desert tortoise, go to the gym to workout, and spend time biking the streets of Sierra Madre.
rideATAXIA seeks to empower local communities to organize neighborhood bike rides and raise funds for FARA's mission to treat and cure FA through research. In the spirit of rideATAXIA, these grassroots rides include participants of all abilities and each ride is followed by a gathering to celebrate camaraderie. Local community events like rideATAXIA are a significant part of what funds research and drive us towards the ultimate finish: treatments and a cure for FA.
Join me in supporting the urgent pace of that research. Donate. Together we will cure FA!
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