Adam Dagley's Donation Page
On March 24th, I'm riding to cure Friedreich’s ataxia (FA), a debilitating, life shortening neuromuscular disease. I’ll ride with local FA families, friends and cycling enthusiasts to redefine what is possible in FA research.
I can still remember running around the house with my brothers Jason and Alex. Sometimes we would play a little too rough, and other times we would just run around. It's funny how you don't realize what a blessing simply running with your brothers can be until you that day your brothers can't run with you anymore. Friedreich's Ataxia (FA) is a disorder that both of my younger brothers have. It took away more than just their ability to walk, it also took their youth. FA is a disorder that affects a person’s balance, hand-eye coordination, speech, hearing, and a host of other medical issues including cardio myopathy and scoliosis. My brothers have needed the assistance of wheelchairs to get around for about 20 years now. They have both been through numerous surgical procedures; some of which have been more serious than others. All these obstacles and hardships because of FA. I've tried to imagine what it might be like to be in their place. I wanted to understand what they were dealing with. It is a life altering disorder that I can't begin to understand. They both have had their good days and those days they wish would just end. FARA (Friedreich's Ataxia Research Alliance) funds research into the treatment and cure of FA. Every year, there are multiple fundraising projects that take place all over the United States. Our goal is simple; cure FA. Here's the good news: We are really close to a treatment and even a cure for FA. We're closer than we've ever been. With clinical trials of drugs in the works and even better understanding of how the disorder works we are within reach of a meaningful breakthrough. Please help me in this fight to cure FA. Please help fund the research that will improve the lives of thousands of people around the world with FA. With your help, and continued research, there's real hope that one day soon both of my brothers, Jason and Alex, will be able to free themselves from the chains that have held them down for over 20 years.
rideATAXIA was founded by Kyle Bryant, a young man with FA. Kyle redefined what was possible in his life when he took up recumbent cycling. He says after training for and completing his first century ride, "I can't even walk down the street, but I rode 100 miles in a day. After that the sky was the limit." Since 2007, rideATAXIA has raised over $6 million to fund FA research progress.
Join me in supporting the urgent pace of that research. Donate. Together we will cure FA!
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