Welcome to Lisa Hennessy's Personal Page
On June 10th, I rode my bike to cure Friedreich’s ataxia (FA), a debilitating, life shortening neuromuscular disease. This is extremely personal to me as two of my children, Zack and Kelly, have FA. Our team, Team Hennessy, rode (and walked) in support of both of them who deal with the effects of FA every day. The team participated in the ride to join local FA families, friends and cycling enthusiasts to redefine what is possible in FA research.
Since 2007, rideATAXIA has raised over $5 million to fund FA research and some of the research that is being done that has real near-term potential. Thank you to those of you who joined us to help continue that momentum! There's lots of hope for a cure, we just need to raise awareness and funds to push the research and drug trials along in hopes that Zack and Kelly, and all others suffering with this rare disease, will be able to walk and even run again someday soon. Please consider joining us next year, donating, or just help us increase awareness and learn about FA and some of the research. Join me in supporting the urgent pace of this research. Please Donate. Together we will cure FA!
Sincerely and with love,
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