Welcome to Tuula M. page !
My sweet cousin Eleanor is a smart, fun-loving 8 year old kid who has been diagnosied with Friedreich's Ataxia (FA).This is a debilitating, life shortening neuromuscular disease. I want to help raise money along with other FA families, friends and cycling enthusiasts to redefine what is possible in FA research. That is why I am going to Chicago on July 23rd to take part in rideATAXIA with my cousin Eleanor.
Ride ATAXIA was founded by Kyle Bryant, a young man with FA. Kyle redefined what was possible in his life when he took up recumbent cycling. He says after training for and completing his first century ride, "I can't even walk down the street, but I rode 100 miles in a day. After that the sky was the limit." Since 2007, rideATAXIA has raised over $5 million to fund FA research progress.
Join me in supporting the urgent pace of that research. Donate. Together we will cure FA!
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