On March 24th, I'm riding to cure Friedreich’s ataxia (FA), a debilitating, life shortening neuromuscular disease. I’ll ride with local FA families, friends and cycling enthusiasts to redefine what is possible in FA research.
I was diagnosed with FA in 2008 after developing symptoms in my mid to late twenties. I have late-onset FA (LOFA) because my symptoms didn't start until later in life. This LOFA only occurs in 25% of people diagnosed, so truly I am the rare of the rare. I have tremendous support from my wonderful family. One of the main reasons I want a cure is to be able to see my kids continue to grow up for many years to come.
Join me in supporting the urgent pace of that research. Donate. Together we will cure FA!